Loading...
If you experience vision that feels shaky, jumpy or unstable because of nystagmus, we invite you to take a short anonymous survey to help guide the development of a new device
Please enable JavaScript in your browser to complete this form.
Start
press
Enter
Please enable JavaScript in your browser to complete this form.
What is your age group?
*
11 - 17 years
18 - 24 years
25 - 34 years
35 - 44 years
45 - 54 years
55 - 64 years
65 years or over
What is your gender?
*
Female
Male
Non-binary
Prefer to self-describe
*
Where are you based?
*
United Kingdom
Europe (excl. UK) (e.g. Germany, Italy, Turkey)
North America (e.g. USA, Canada)
Central Asia (e.g. Kazakhstan, Uzbekistan)
East Asia (e.g. China, Japan)
Latin America & Caribbean (e.g. Chile, Costa Rica)
Middle East & North Africa (e.g. Egypt, Iran)
Oceania (e.g. Australia, New Zealand)
South Asia (e.g. India, Pakistan, Nepal)
Southeast Asia (e.g. Philippines, Thailand)
Sub-Saharan Africa (e.g. South Africa, Kenya)
Have you been diagnosed with nystagmus?
*
Yes
No
Not sure
What type of nystagmus do you have?
*
Congenital nystagmus (present since birth or early infancy)
Acquired nystagmus (started later in life)
Nystagmus linked to another eye condition (e.g., albinism, retinal disease, optic nerve condition)
Not sure
Have you ever tried any treatments for nystagmus?
*
Eye muscle surgery
Medication (e.g., gabapentin, memantine)
Glasses or prisms to help with head position or vision stability
No treatments tried
Not sure
Other treatment (please specify)
(Select all that apply)
*
Does your vision shake, blur, or feel unsteady because of your nystagmus?
*
Yes
No
Not sure
How often does your vision shake, blur, or feel unsteady when you try to look at something?
*
Never
Rarely
Sometimes
Often
Always
How difficult is it to read small print (like books, labels, documents) because of your vision shaking?
*
Never
Rarely
Sometimes
Often
Always
How difficult is it to use screens (like phones, tablets, or computers) because of your vision shaking?
*
Never
Rarely
Sometimes
Often
Always
How difficult is it to watch TV or movies because of your vision shaking?
*
Never
Rarely
Sometimes
Often
Always
How difficult is it to walk outdoors or move around safely because of your vision shaking?
*
Never
Rarely
Sometimes
Often
Always
How difficult is it to play sports or do exercise because of your vision shaking?
*
Never
Rarely
Sometimes
Often
Always
How often do you feel worried or frustrated because of your vision shaking?
*
Never
Rarely
Sometimes
Often
Always
If there was a device that could reduce the shaking or blurring of your vision, how interested would you be in trying it?
*
Not interested
A little interested
Fairly interested
Very interested
Totally interested
Which features would matter most to you in a device?
*
Non-invasive (no surgery or procedures needed)
Suitable for outdoor use (e.g., walking, travelling)
Easy to remove and put back on
Discreet (not noticeable to others)
Long battery life or easy charging
Portable (easy to carry or wear)
Select up to 3 features that matter most to you
Are there any other features you would like to see in a device to help with vision stability?
*
your blur, If
In which situations would you want better vision stability?
*
Walking outdoors
Reading (books, labels, documents)
Using screens (computer, phone, tablet)
Watching TV or movies
Playing sports or doing exercise
Select up to 3 situations that would matter most to you
Would you prefer a device that:
*
Works all the time
Works only when needed
Not sure
Would you like to be involved in a discussion group to help shape and develop the device?
*
Yes
Maybe
No
Please enter your email if you would like to be contacted
*
Your email will only be used for this study and will not be shared. We will contact you in due course for opportunities to get involved in our research.
We want to use respectful and inclusive language when referring to people affected by nystagmus. When referring to yourself, which term would you prefer?
*
Person living with nystagmus
Person living with oscillopsia
Person with nystagmus
Person with oscillopsia
Individual with nystagmus
Nystagmus patient
Nystagmus sufferer
Other (please specifiy)
*
When referring to a group of people with nystagmus, which term would you prefer?
*
People living with nystagmus
People living with oscillopsia
People with nystagmus
People with oscillopsia
Nystagmus community
People affected by nystagmus
Individuals with nystagmus
Other (please specifiy)
*
Are there any terms you STRONGLY DISLIKE for describing a person/people with nystagmus?
Person/people with nystagmus
Person/people with oscillopsia
Person/people living with nystagmus
Person/people living with oscillopsia
Person/people affected by nystagmus
Person/people affected by oscillopsia
Nystagmus patient(s)
Nystagmus sufferer(s)
Other (please specify)
Select all that apply
*
Complete Survey
